As vivências em relação ao agregado familiar: caso de epilepsia

Abstract

In the present work, we understand the relationships, the dilemmas of the families and the epileptic patient, at the Hospital Geral de Mavalane, in the family homes in Bairro Mavalane, city Maputo. The research started from the idea that, there is no experience in relation to the household to the dichotomous model that contrasts subject and object. Such a hypothesis expresses only one modality of experience, the one forged by the reflexive attitude. The basis and the possibility of the same attitude are given by another type of experience, pre-reflective or pre-objective. To understand this, I conducted interviews with health professionals, with the patient and their families, where I went deeper with informal conversations; described the profile of each epileptic and their families, made regular visits to the families' homes and observed the dynamics of the conviviality, and their dilemmas among their household members. Based on these methodological instruments, I understood that epileptics as individuals seeking treatment at the Hospital Geral de Mavalane are informed first by their family and the world around them, through socialization and the transmission of social practices. Most of these affirm that the disease is natural but the experiences and representations they make, part of their social context, place the disease being supernatural. Thus, the search for a cure for the epileptic is a complex fact. The parents of minor patients with epilepsy and adult epileptics take charge of the situation without losing hope with regard to the activities, tasks and duties they carry out. The technological, economic, political and cultural factors provided by biomedicine serve to confirm the vision of health, disease and cure. Although epileptics or their relatives are sometimes unable to buy drugs on time or even because the costs are high, they never reject the biomedical conception. But they also preserve and live their culture, although there is a plurality of doctors. (TRADUÇÃO NOSSA)